well, hello there lovestitched lovelies! i’m honored, happy, and immensely grateful to be guest posting here today.
first and foremost, can i tell you something about brittany? she is the real deal. no joke. several months ago, i attended a utah blogger meetup, all by my lonesome with my shy self. we were going around the circle, introducing ourselves and when it came to my turn, sharing my story in such a public manner moved me to get a little teary eyed. brittany promptly came over and gave me a big hug. we had never met, i had no idea she was going to be there that night, and i had only emailed her a few days prior about donating an item from the love stitched shop for a fundraiser. her kindness overwhelmed me; her heart is pure gold.
i live with a chronic, incurable disease called Cystinosis that affects only about 500 people in the United States. basically, every cell, organ and tissue in my body is slowly crystallizing. i emphasize the living with, as opposed to suffering from; i live with pain most days, but i refuse to suffer in it. doctors told my parents that i would not live past 9 years old, but I had a life saving kidney transplant when i was 11 years old. i am a momma to an amazing little ball of light that is my 19 month old daughter. there are only a few others like her in the world, as there have only been 5 or so women with Cystinosis whom have been able to have children. (pregnancy with a transplanted kidney is a high risk situation, then add in the other complications of the disease and it was an incredibly scary and stressful road.) she beat the impossible odds up against her and i marvel at her existence every single day. below is a post i recently wrote about the winds of change of motherhood.
come celebrate life with me! xo.




























Beautifully written! :) Thanks for sharing!
Awww… she's adorable!!
Tahnie, you are such an amazing and strong woman and mom! thank you for the inspiration that you are!